Below you will find a copy of an update I received back in November of 2010 from Jenna Markle, Director of Parents United for Pharmaceutical Safety and Accountability. This is an update on the Singulair's safety in children. I originally posted my personal article a year ago, because of the horrible side effects my son was experiencing after being on this medication for six weeks. It became quite the discussion on UFAN (Utah Food Allergy Network). If you already are or are considering putting your child on Singulair, please read the update below and look up my original Singulair blog, dated February 25, 2010.
It has been a busy week for Parents United! On Monday evening, I did a live interview with Tisha Thompson of WTTG-TV Fox 5 News in Washington DC. Thank you to Ilene Goldman and Melissa Epperly for interviewing with Tisha. Thank you to all of you who offered to or shared your stories with Tisha as they provided valuable information for the story. I know she was unable to contact all of you but thank you so much for your willingness to help.
You can view the story here: http://www.myfoxdc.com/dpp/news/investigative/fox-5-investigates-singulair-110810 I emailed this link to my local station and requested they air the story. If you all do the same we can get it to go national!
You can view my interview by clicking on the link below the main video.
On Tuesday, Jan Gilpin, Rhonda Coffin, and I attended the Eunice Kennedy Shriver National Institute of Children’s Health and Human Development’s Best Pharmaceuticals for Children Act annual conference in Rockville, MD to share our children’s experiences with Singulair and urge them to investigate Singulair’s safety in children. I also shared how Singulair traumatized your children and informed them that some of your children continue to experience some of the problems they developed while on Singulair weeks, months, or years after stopping the drug – but it is crucial that NICHD hears the details directly from YOU. (I did not share names at the meeting.)
The NICHD is accepting public comments on their annual BCPA Priority List of Needs in Pediatric Therapeutics, for which Parents United nominated “Safety of Singulair in Children with Asthma and Allergies.” Our nomination was accepted to the draft list, available here: http://www.circlesolutions.com/2010BPCAAnnualmtg/PDFs/PriorityList/DraftPriorityList_10-4-2010_LN_2.pdf. The NICHD will review comments before finalizing the list.
I strongly urge ALL OF YOU to submit your children’s stories to the NICHD and support our nomination. Send your stories to firstname.lastname@example.org by November 30, 2010. Some of you already provided information for me to send to NICHD, but please submit your stories directly as they will be reviewed by different individuals. If you know someone whose child experienced problems with Singulair, please share this information and ask them to share their child’s story.
I expect that some of you may have moved on and want to put your child’s experience far behind you. But knowing firsthand what Singulair can do to children, we all need to keep making noise so that the children who are still suffering can be helped and those that may suffer in the future can be protected.
I hope we can count on your help.
Parents United for Pharmaceutical Safety and Accountability